Monday, April 16, 2007

It is ok...

My heart has been heavy with feelings I am still sorting out. We attended a baseball game of a youth in our church, all four kids happily in tow. These times out as a family are precious and a fun outing to enjoy together. Ezra comes with us everywhere we go, having him part of our Borbe Bunch is a piece to our family puzzle. The stares and gawks are often few and far between, or maybe I just am learning not to notice them so much, but this evening was different.
I noticed every single glance, no... stare given towards my way, now granted pushing a double stroller over a gravel pathway while trying not to knock over anyone in my path is quite the sight to see, but even still, the stares were towards my brown haired cutie little man sporting his foot braces for all to see, arms stuck in extension, unable to bring them down, due to his muscle tone. It may have been an extra sensitive time for me as his mommy or maybe that is the norm that I don't always pick up on, but for some reason, when walking back to the car, away from the crowds, I wanted to cry. Not cry in pity for Ezra, but in frustration that he will have to be the bearer of stares such as those for the rest of his life. We are blessed with an amazing support group of loving friends and family, a church family that adores Ezra and loves him unconditionally, so why did this bother me so much....this night, this outing?
I have had some time to process my feelings, to think and ponder. My mind often races and whirls with all that is going on in my life, I know many of you relate, for we often battle in our minds, a place of continual question and reality. Questions such as did I start the dishwasher to seeking God's wisdom with, what should I do in this area of discipline towards this child....the whirling thoughts are endless and skip from important to every day duties....so somewhere in the mix of it all, God is teaching me and patiently showing me more and more every day my place in this world of mothering a disabled child. God continues to point me back to His Word and reminds me to "take every thought captive..." to bring my feelings and thoughts to Him. I must claim His Word to be true and know that even in the hurts of life, He is still on the throne and sovereignly controlling all that takes place. It does my heart good to be refreshed in His Word, to know and stand on the truth that God does NOT give me more than I can bear and is the grace I need and rely upon day in and day out.
For those of you who personally know me, you may say that I usually am an upbeat person, or at least I have been told. So, often I find myself wanting to continue this and only be "real" with my hubbie.....I find that does me no good to keep feelings in, so that is why I write, to praise God for His patience and to reiterate my love for a husband who listens and loves with great wisdom. As I wrote before, these feelings have been in my mind and heart for days now, not sure how I needed to express them and work through them, so let me share how God has shown me yet again that He absolutely created me to be Ezra's mommy. How God has blessed me with all my children, each one teaching me so differently by way of various communication, by word or deed, to differing personalities present in them all. Each child given to us mommies, offer times of teaching, we must be willing to accept.
So, this specific situation has taught me that, yes indeed I am human and I do hurt because of other people. I do want with every fiber in my being for my son to be accepted and loved by all, not stared at or thought of as any less than that running two year old who lives down the street. I have to work through the hurts and the longings of my own heart, all the while, taking thoughts of sadness, not given from the Lord into captivity and then request from my good God that He enable me in my response and heart towards those who are afraid of the unknown. My desire is the educate those who wonder about disability and testify to God's goodness in our lives because of Ezzy's precious life.
I found myself wanting to simply state to the onlookers, "his name is Ezra and he is a miracle", to have them stop in their tracks and acknowledge that he is a person and he is worth knowing. But the reality is that what they need to see is God in me, not a snippy response or a hurtful word, they need to see a mommy unconditionally loving her son, soaking in his chocolate brown eyes, knowing that though a sweet "ma-ma" word may never leave his lips, he speaks of his love for his momma by way of his precious gaze. I am a blessed mommy, who sometimes needs to be reminded that it is OK to be sad and confused, as long as the Rock I stand on is God and His precious Word to me. I cling to Him, I need Him, I love Him.
"Thou wilt make known to me the path of life; In Thy presence is fullness of joy; In Thy right hand there are pleasures forever."
Psalm 16:11
I am Ezra's mommy, a blessed one I am. I love you Lord and thank you for being a steadfast unshakable pillar of strength. Strengthen me in this journey, may I bring glory to you in all that I do. May I not become weary, but rest in your goodness and mercy. As soon as I get entangled in thoughts and questions, may I stop and rest in YOU and your complete sovereignty, gently bring me back to you and the JOY I have in you. I thank you for all you are teaching me, for precious friends who love me and pray. You are a good God. It is not always going to be easy, a road without bumps and hurts, so strengthen me and uplift me Lord, YOU alone are the strength I need, not approval of man or acceptance of others, just YOU. Thank you for the gifts you have entrusted to me, guide me, use me...teach me.

9 comments:

Richard J said...

Wow. I just stumbled on this blog, and this post struck a cord with me. Our family has kind of an unusual make-up, and we get some looks, some kind, some not-so-kind. The thought that someone might have unkind feelings toward our kids or our family makes me crazy sometimes.

But my wife always tells people that God put our family together, and she's right. I have no doubt that the same is true of your beautiful family. You and your husband are blessed in ways that parents of children who don't have the same challenges will never know. I'm sure you know that.

God bless you for reminding me to stay thankful for everything God puts in my life, even the things I don't quite understand...

Richard
http://familyfrontiers.blogspot.com/

Wendy said...

Thank you for sharing this. Your children are blessed to have a mom like you.

In that situation I think I would have a hard time keeping my mouth closed at times.

Thanks for reminding me it is about Him and not us.

Anonymous said...

Liz
You continue to capture my heart. I am amazed at you to have 4 kids, when I struggle with 1 on many days, let alone your precious Ezra to provide extra care and support to. I admire you, mostly because you let us see your heart and your struggles. Know that you are loved and prayed for. And that each of your kids have melted my heart and I am so glad that I got to spend some precious time with them. I am constantly reminded of them when I look at their pictures on my fridge. From when Gabby was a baby and we first met, to Ezra's birth announcment, to Ellie as she grows and Owen's sweet birth. I am missing you like crazy!
Thank you for your heart and letting us all see it. You certainly are a blessed mommy and a wonderful friend!
Love you
Erica

Barbie @ Mamaology said...

Liz, your love and commitment to the Lord is so encouraging. It's so easy to justify our emotions and not bring them captive and to the Lord where He can teach and grow us. You inspire me to do just that. We serve a mighty God and I see His love and grace in you! May He bless you.

Perri said...

Liz, this verse reminds me so much of you and your love, pride and joy in the miracle of Ezzy.

Psalm 26:3 “For your steadfast love is before my eyes, and I walk in your faithfulness.”

And this - which I read earlier brought you to my mind.

Count it a joy, Dear One
When life gets hard.
God is doing something huge!
He is also proving
That you are NOT a fake.
Be brave, Mighty Warrior.
Your God is with you!
When waves are crashing,
Stand to your feet,
Throw your head back
And feel the wind of the Spirit!
God is painting a masterpiece
With multi-colored trials.
Go forth and display
Divine special effects
To the great glory of God.
YOU CAN DO IT!

You are an amazing woman.

Loving Life said...

Liz, I love your transparency! I think its something that I've always appreciated about you. I remember those early years when people would outright ask me if I burned Wyley or if I hit him, threw him down, if I regretted having a marked child. I remember the inadvertant comments of people explaining to their children that Wyley was an 'imperfect child' but they were perfect children and I remember a few times where I just was so upset that people could be so insensitive. Didn't they see what a sweet mannered child he was? That HE overcame so many struggles at the beginning because GOD has something very specific in mind for this little treasure? So as a parent I decided to talk about it with those who 'stared' and most importantly, with Wyley so he could answer for himself and be strong in who God made him. Course it was easier said than done, but the sweetest pleasure came when we were visiting his newest little cousin Clara when she was born and a nurse walked into the room and almost dropped her tray when spotting Wyley. She set the tray down and rushed over to my sweet buddy and asked if he was ok, could she get him a cold cloth? An ice pack? Seriously we all sat confused because she saw what we didn't. Wyley in his precious way looked up at her with a smile and said "I'm ok! It's how God made me unique." I could have cried at his understanding and acceptance that each of us are made different for Him and His glory! I know our precious EzMan may never get to defend His God outloud, but isn't that so wonderful about family? How we can be the ones to speak out in compassion even if its just in passing. So many around us forget that life is a gift to be valued. Those of us who have seen the other 'nursery' after a baby delivery, where reality lies in the hands of our loving God- struggle a few moments here and there and understandibly so! I'm so thankful for each unique mark God gives us (despite the trials and heartaches that surround it) because its evidance that He's found an area in my life that needs construction! Those who walked by you won't forget EzMan too quickly. It only takes a few seconds to store a memory and those families will reflect on Ez and on his loving family who so readily accepts and loves and provides for him. Your silent testimony even in those struggles is what others see as a time to be thankful for ALL God has given them. You are precious Liz and wasn't God overly gracious to bless you with such a perfect EzMan? Nothing about him could be better than it is now. No matter what others think! If God made Ez this way, than he IS as perfect as he can possibly be!

Oh...the rantings from a bedridden woman- sorry darling!
I love you Liz! And I love that your family and friends can so readily see the work of our Loving Father thru YOU and your submitted life to Him! Thanks for being 'real' and for sharing not only the struggle, but the solution you found in Him as well! You truly are a 'Blessed Mommy' Friend!

Tiffany said...

Oh Liz,
It never stops amazing me how much our hearts are alike! If I could ever get out your way I would love to meet you and your family in person.

Just a few days ago - when Dillon turned 10 months I did the same thing. Every little thing made me cry. I am just finishing writing his story for those who either stare and are just too afraid to ask or for those that actually ask me what is wrong. Our church prints our salvation stories so that we can hand them out to people - but I have also decided to start handing out Dillon's story. It has enough about salvation in it that if they are interested they can find out more information and request a Bible study. My husband just has to proof it once more then I will be getting it printed. I could have handed out thousands already so I am excited to get them. I will post it as soon as Josiah finishes. This will not only be a way to witness to people, but will also let them understand about Dillon's disabilities.

Another thing I am working on is a way I can have a ministry to the special needs community in my area – I am about to post that idea as well – maybe tomorrow if not then sometime this coming week. I would like your opinion on it so when I do post it I will stop by and let you know it is up.

Something I have thought about that encourages me when I am down over Dillon’s health is before we got married I honestly prayed that if our children would not be saved I would rather God never even give them to me than to watch them die and go to Hell. I often wonder…did God answer my prayer? Would Dillon have rejected God if he would have had all his mental capabilities?! That is scary to think about – but it gives me comfort to know that – unless a miracle happens and Dillon is healed – he probably will never be held accountable as we are. I don’t know if this would be an encouragement to you or not – but I know I would rather live this life with Dillon and struggle daily with feedings, holding his head up, coughing, breathing, and all the stares and questions of others to know that one day Dillon WILL be in Heaven. Not only will he spend eternity with me in Heaven, but he will have a new, healed body!!!

I thank the Lord I have found you as a friend on blogger – you are such an encouragement to me. I know you will have your down days, but God has used you and Ezzy in many lives I am sure…mine included!

Liz Ferguson said...

Dear Liz,
I have stopped but your blog a few times this week wanting to comment on this post but not really sure what to say. I can't in any way pretend that I understand the hurts of your heart. You have been on my mind and in my prayers. I am so sorry for the hurt you have gone through. Thank you for allowing us to see your heart and the deep love you have for sweet little Ezra. Thank you for sharing all that the Lord has been faithful to teach you, as painful as it has been.

Erza is so blessed to have you as his mommy. You are an amazing woman. You are a true testimony of the Lord's faithfulness. The things you and your husband are able to teach your little ones because of Ezra are incredable. Life lessons on unconditional love and sacrifice are displayed so evediently before their young eyes.

You are a blessing and encouragement to me. I only wish I could be such an encouragement to you. The Lord is using your life for His glory!

You are in my prayer!
Love from a sister in Christ,
Elizabeth

Jackson Family said...

Hi Liz,
thanks for your thoughts... God has made beautiful creations in all your children and has blessed them with their own unique personalities and abilities. He has made them each perfectly the way He wanted to, so we can only marvel at His goodness toward us! You are such a great wonderful Mom and it's only because you love your Ezra so much that those stares hurt sometimes! Love you and miss you so so much! melissa